Well today we were able to get him out of his room before 1pm, but just by a hair. We promised Dad's pancakes and Mom's zucchini bread. Both of which are finally done. Takes a while to cook 26 pancakes. Now I know for a fact that his tummy and mind are not working together as he only ate about 1 and a 1/2 pancakes. Last time I cooked pancakes he ate 4 and wanted more but told him no, we needed to slow the roll on the pancakes.
One thing we are seeing is almost a total lack of control of bladder and bowel. We have had to clean mattress covers and blankets and him for the past two mornings. His morning output is less than 200 cc's. He is drinking fluids all day long he would normally have morning output of near 800 cc's, With the high being 1000 cc's.
I am so glad school is out for my wife and she is able to be here with me with him. She will have her own list of concerns to ask the Dr when we go for his follow up visit.
Josh is being his old self in his obsession with certain things. Going to the pool is a big one. At least its not food. You can see his weight loss. I am comfortable he is getting enough to sustain him.
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